Comments on: Why a Person who HATES POLITICS is lobbying for a bill

By: 7 quick takes « So much to say, so little time

7 quick takes « So much to say, so little time — Fri, 26 Feb 2010 12:05:00 +0000

[...] On Tuesday, I went to Jeff City for a meeting on HB1810. As I left town, headed for home, I ran into traffic. Bad traffic. Lane-closure traffic. I gnashed [...]

By: Identity Crisis « So much to say, so little time

Identity Crisis « So much to say, so little time — Mon, 15 Feb 2010 12:16:39 +0000

[...] that I have to grit my teeth and space jump out of my comfort zone to call legislators, despite hating the political process top to [...]

By: 7 Quick Takes, vol. 68: a busy week « So much to say, so little time

7 Quick Takes, vol. 68: a busy week « So much to say, so little time — Fri, 05 Feb 2010 13:01:54 +0000

[...] It was a big week for advocacy efforts, too. PEP-C met on Saturday to mobilize the forces. In the chaos of starting Julianna at school, I [...]

By: Kathleen

Kathleen — Mon, 25 Jan 2010 23:21:12 +0000

When Julianna was born, a doctor came in to talk to us–I was still half knocked-out from drugs and had yet to stand up post-C-section for the first time. And she said sternly, very nearly wagging her finger at me: “You have to be prepared to be an advocate for your daughter, because no one else is going to do it.” I think of that nearly every day.

By: Sarah M.

Sarah M. — Mon, 25 Jan 2010 20:30:07 +0000

No, we are in Iowa. I just decided that I would cross the coverage-for-therapies bridge when we get to it. We took a break with EI therapies because of some things I didn’t like about our intervention teacher and because Cam was less than cooperative. I’m going to have to call them back and get something going again. Still not sure on how to address that. It’s just so frustrating that you have to fight so much for your child to be treated fairly!

By: Kathleen

Kathleen — Mon, 25 Jan 2010 18:52:40 +0000

Omigosh, what a nightmare. Are you in Illinois? I think that autism is covered by a bill that went into effect last year.

By: Sarah M.

Sarah M. — Mon, 25 Jan 2010 17:42:13 +0000

I commend you for fighting so diligently for your child’s rights. I also completely agree with you that it is not always best senario that the parent is the one working with the child the most. I learned this firsthand with our Early Intervention program. It got to the point where Cameron didn’t want to work with them, they wouldn’t force him to, so they were telling *me* what I should do with him. Yes, I agree the parent needs to be the teacher. But I’m not qualified in this area. I don’t know the different techniques to use with him. The things they asked me to do were requiring us to completely change our lives. I wonder, what do they tell parents who don’t stay home with their children and can’t do these things? And why don’t they realize that while, yes, I want to help my child, I also have another child who needs me and is feeling very neglected that he’s not getting the attention his brother is? Today I called our insurance company to see if there would be any problems covering the upcoming autism evaluation we have scheduled for Cam. She said that there shouldn’t be a problem covering the evaluation, but should he require services, I should call again. I asked her if she could tell me if therapies for autism were generally covered. She said, “Well, if it’s just a developmental delay, they aren’t covered.” What does she mean “just” a delay? I also took the time to inform ther hat that is, indeed, what autism is–a devleopmental delay. Very frustrating!