So Much Trouble In Such A Cute Package

I guess I got spoiled. I don’t know if you’ve ever heard this, but often, parents of kids with special needs say that their special needs kid is the easiest one to parent. Well, each child of mine presents unique challenges to my parenting prowess, but I have to say that until now, I’ve never actually experienced the age of Two.

Let me be clear: when this kid is cute, he is cute. I’ve experienced unbearable levels of cuteness from his big sibs, but this one takes the pursuit of adorability to a whole new level. And he’s smart. Uncannily smart. My little late talker bypassed most of the normal first attempts at speech. His clearest word? “Meeeee!” (Pointing to himself.) As in: It’s time for dinner. “Meeeee!” Okay, let’s go outside. “Meeee!” He walks around the house labeling items by the name of their owner. “A-a,” he says to Alex’s coat. “Ma-ma,” pointing to Mommy’s shoes. And yesterday, he pointed to the crunchy peanut butter, which only one person in the house likes: “Da-da!” I mean, nothing gets by this kid.

However.

For Nicholas, the age of two is less about tantrums than it is about whining. He whines whenever he doesn’t get his way—which (considering that left to his own devices, he would do nothing but watch TV and eat all day long) you can imagine happens quite often. When I try to redirect or correct him, he sulks. Example: he pulls the videos off the shelf. I say, “No, you already watched a video.” He throws the video on the floor, watching me for a reaction. “Nicholas!” I say. “Pick that up and put it back on the shelf.” He turns and runs away, gambling that I’ll be too preoccupied to come after him. Which, until recently, has been a good gamble. But lately I’ve realized that I can’t delay the lessons of discipline anymore. So I go after him, bring him back, try to hand-over-hand him into compliance. He picks up his feet and hangs from my hands, shrieks, whines, and occasionally screams.

Then there is dinner time. He will not eat vegetables once he has something he likes more. He’s the same way about most of our main dishes. He’s generally cooperative if I pick up the spoon and put the food in his mouth for him, but he will not feed it to himself. Again, until recently, I’ve accepted that as the cost of having young children.  But now that we’re trying to add to the family, I realize that I can’t keep treating him like a baby. He’s on the cusp of two, and for the sake of parental sanity, he’s got to be nudged onward.

And of course, he absolutely refuses to do anything outside of a five-inch radius from Mommy’s side. I try to include him in cooking, dishes, laundry, etc., but this is a real problem when I’m trying to work on the computer. Which I have to do, because I am a work-at-home mom, and nap time doesn’t cut it.

I thought that if I made time every morning to focus on him one-on-one—to play, or cook, or take a walk—he would then be more willing to play independently at other times. No such luck. The kid will not go downstairs and play with the toys. He spends most of the time crawling up onto my lap and wiggling around, forcing me to use my arms to hold him back from deathly plunges while simultaneously trying to type; clicking my mouse, yanking the mouse pad out from under it; and pulling on my arm while whining. A lot. And I’m about at my wits’ end.

I want to be there for my child when he needs me, but he’s so needy! And I really think it’s because he’s bored when his siblings aren’t around. So today, I’m throwing open the comments, asking for ideas on how to achieve the needed balance between my time and his behavior. I know he’s only young for a short time, but that will be true till the day our chaotic house becomes an empty nest. Life can’t stop for the next 16 years. I need suggestions on how to cure the whining!

7 Quick Takes, vol. 103

___1___

I hardly ever click on anything in the Facebook sidebar, but this one caught my eye:  “What’s the point of Girls? Challenge one father’s goal for what he’s trying to raise his father to become by clicking here.”  Uh-oh, I thought.

But I was wrong. His post is stellar, and although at first I thought, “I wish I had a daughter this applied to,” I realized almost immediately that it’s even more applicable to Julianna than to her typically-developing peers. Check it out.

___2___

You know it’s campaign season when you find yourself witnessing the worst of human behavior from people you don’t even know. Here’s  an excerpt from a series of emails I got this week:

Proposition B will do NOTHING TO SHUT DOWN PUPPY MILLS IN MISSOURI.   NOT TRUE!
Oh, come on, people.  Really?  You are going to vote against a law that will reduce the number of breeding animals in a puppy mill from thousands to 50?  Please, think about this. 

 The HSUS sponsored Prop B was passed in California and now they pay $7.00 for a dozen eggs. The HSUS doesn’t care about puppies! They only want to turn the human race into vegitarians. They have stated they would rather see the human race die off so the other species could have the earth. I say let them lead by example. The left has always tried to use compasion as a lever to get their agenda passed. Do your research on the proposal’s sponsors and find out for yourself.

$7 for a dozen eggs in CA?  I Googled “Price of one dozen eggs in CA” and immediately found this:

http://answer.co5.biz/food-drink/how-much-does-a-dozen-eggs-cost-where-you-live.html

Please look at response number 8, dated August, 2010.  Eggs in CA are a whopping $2.50.

As for your ludicrous portrayal of the HSUS…poppycock.  Please include the source of this rumor in your next email, I’d love to see it. 

And please, Mr. ——, use your spell check.  It’s hard to take your email seriously if you won’t even bother to present your ideas in a literate manner.

 ___3___

When I start getting emails like these, I just want to retreat from social media. C’mon, people. No wonder the candidates treat each other the way they do, if this is what they see from their constituents!

___4___

Well, there are happier subjects to address. I’ve been meaning to make note of it for two weeks: Nicholas has taken his first baby step out of TwinLand and ahead of his big sister. He can now repeat Mama, Dada, Wawa, Gege, Yiyi, Nana and Vava at will, on command. He’s also made progress on the toilet in the last week, for what that’s worth. But Julianna’s starting to show signs of a difference in the way she thinks & communicates, too. Christian brought home a new Signing Times video from the library, and she keeps coming up to me and signing Daddy–baby. Baby being code for her videos. After a while I realized she was asking for the Daddy Signing Times video. Ain’t that just too cute?

___5___

It’s another sleepy morning. I stayed up to finish reading Catching Fire. If you haven’t heard of this latest YA book craze, it’s time to go to the library and put your name on the waiting list. Suzanne Collins makes me despair of being able to write a well-plotted, compelling book. She’s got it down, man. When was the last time I read a book between sunup and sundown? Oh, yeah. Six weeks ago, when I read The Hunger Games.

___6___

I’ve been hard at work this week, clearing out writing projects and trying to outline in bits & pieces, in preparation for NaNoWriMo, which for those who are unfamiliar is a really stupid, hard-to-write-and-say abbreviation for National Novel Writing Month. Let me tell you, I am feeling intimidated. I know all the back stories for my characters, all the things that have to happen to them, but the thought of figuring out what events it takes to get them there, and have those events actually draw people in…I don’t know, from this side of November 1st, that just seems more than a little overwhelming!

___7___

But I’m sure once I get started writing, things will begin to flow. There’s only so much you can do in prep, and then you just have to plunge in. And I warn you, I have quite a few writing blog topics in mind.

Have a great Halloween!

7 quick takes sm1 7 Quick Takes Friday (vol. 103)

At the Grocery Store

The first course of an Aldi-Nord Filiale in Do...

Image via Wikipedia

Maybe it only happens to me, but it seems like some of the most profound experiences happen in the grocery store. There was the day when judgment turned into compassion. The encounter with people who really do “have their hands full.”

And then, this.

Sunday afternoon at Aldi. The usual motley assortment of people: an older black woman with long hair extensions; the mixed-race couple with an adorable little girl in Target-size polka dots; the huge black guy calling home for instructions; me, the slobbily-dressed white woman. And a middle-aged hippy-esque white woman, admonishing, “This will take a lot less time if you’re nice,” echoing the sentiments I communicate every time I’m forced to grocery shop with my munchkins. Only she is talking to a person who is very obviously not a small child. A 4 ½-foot tall person with straight dark hair, like my daughter’s. A person who walks on the insides of her feet, just like my daughter.

My insides electrify. Trying not to stare, I work my way up the warehouse-stacked aisle, consult my list. Flour. Saltines. Olives. I pull even with the cart. The woman has disappeared around the corner, and the girl has her face buried in her hands, crying. Exactly like Julianna cries when she gets scolded. It’s all I can do not to throw my arms around her and rock her.

The mother comes back and fixes me with a fiercely protective glare. Hastily, I stop looking, open the glass door and pull out a jug of 2% milk. Behind me, the woman murmurs kind words, and her daughter stops crying.

Must not stare, I tell myself, and linger at the butter and yogurt while they continue on ahead.

I catch up to them again halfway up the next aisle. They are talking as I speed past without turning my head to look. Nothing profound. Just “do you want?” and “can I have?” Simple, everyday words. Such beauty: words. Out of the mouth of a girl who was once just like mine.

Stop staring. Tomato juice. Pepparoni stick. I must look like such a jerk to this mother. I want to stop and say, I’m not a creep. I have a daughter with Down’s. I want to take her by the elbow and say, “Tell me everything! Seeing you is like glimpsing my own future. I knew it would be good, but it’s so much more beautiful than I could have guessed!”

I’m sure she would melt instantly, open up and tell me more than I could possibly process in one encounter. That’s how I would react. Parents who share this experience are almost universally unable to shut up when we encounter each other. I’ve had profound conversations with complete strangers whose children look like mine at Kidz Court, at O’Hare International, and at Tampa International airports. (And I hardly ever fly.)

But today, my inhibitions stop me. Because this child is older—on the cusp of adulthood, even. And now her feelings must be consulted, too. We can no longer talk around her, speak for her. And I don’t know how to do that without talking down to her.

And yet, the glow of that near miss remains with me two days later, promising that my heart is poised to expand again. Coming as it does on the heels of reading some heartbreakingly callous comments online, I can only whisper inadequately: Thank you.

Visit On, In and Around Mondays for more snapshots of place and time.

Published in: on October 19, 2010 at 5:10 am  Comments (10)  
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Alex faces

He goes off to school now, and last night, as I lay awake thinking about him, I realized that he spends more of his day away from me than with me. He has a whole series of experiences every day that have nothing to do with me, experiences that I will never share, the way I shared his first years.

Case in point: He’s been a Batman boy for almost a year, after a years-long stint as Superman, and yet his kindergarten friend had only to talk for a week about Iron Man for Alex to shift loyalty completely to a superhero about whom we know very little. (Although we’re learning.)

It doesn’t make me weepy or anything…in fact, Alex is a whole other world from the little ones. All of a sudden, right before school started, he climbed another notch on the developmental ladder, coloring neatly, making recognizable drawings and recognizable Lego creations. This one, for instance, developed into a basketball player with his leg bent and resting on the ball shortly after I took the picture. Being his parent, I have the luxury (if I want to) of sitting back and just watching it all happen…a far cry from my second-born with her endless delays and my third-born, who seems unmotivated to exit babyhood. Alex goes full-speed ahead.

It’s often hard to remember, then, that he’s still a little boy, who falls apart when he gets tired, who has to wear pullups to bed, who needs to be taught how to clean his room. It must be hard to be the oldest in a family with so much babyhood hanging around.

But then I see those big eyes, glowing brown in the sun, and I turn all gooey inside, and I grab my Iron Man and pull him on my lap and tickle him and chew on his cheeks and rub noses with him, and we reset to Mommy and little boy all over again. And life is good.

Linked to “You Capture: Faces” at I Should Be Folding Laundry.

The Note

Alex was in trouble on Sunday. I’ll spare you the details, but suffice it to say the punishment involved the loss of music and movies for a whole week, and he was not happy. He disappeared into the basement for almost an hour, and when he came back up, he was classic five-year-old giggly, standing there with his arms behind his back. “Guess what I made,” he said.

I tried three or four times, offering the usual suspects: Superman, Batman, a rainbow, but he kept saying “No!” Finally he pulled it out:

It wasn’t until Christian came to take a look at it that I realized how profound was the slip of construction paper I held in my hands. It just looks like a bunch of letters. But there’s a message here, “th”‘s coded as “f”, strike throughs and haphazard guesses at spelling notwithstanding. And when I realized that he did this without help, it took my breath away:

Mommy, I thank you for giving me some fruit snacks.

(Batman fruit snacks, an unheard-of treat, in case you’re wondering.)

For a child who does not hold discipline against his parents…thank you, Lord.

Published in: on September 23, 2010 at 5:17 am  Comments (4)  
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Special Exposure Wednesday

I realized something this week: It’s never going to end.

For the first two and a half years of her life, my sight was focused on getting Julianna mobile. Crawling, pulling up, and all the other steps along the path to walking. I knew that on the far side of walking lay teaching her to talk, an even more daunting task. After all, you can grab a leg, bend it, set it down, grab the other one—you can guide her through the motions of walking, and thus help her learn what it feels like. The lips and tongue are not so accessible.

But all this time, I’ve thought that once those two monumental tasks are out of the way, life will get easier.

Until a few nights ago, when I realized that beyond speech lies reading; beyond reading lies math. And beyond these two most basic life skills lie a host of things I haven’t yet foreseen that walking, talking, reading and counting are not going to prepare her for. At every step of the way, learning will follow the same, agonizingly slow pace, each new milestone just as dearly bought as the last with great effort from her teachers…and from us.

The knowledge overwhelms me. I whispered it to Christian, lying in the darkness two nights ago, and he went still for a moment. “Oh, I know,” he said. “I can’t think about it, or I’ll panic.”

I try to be positive about life with special needs. But this is definitely not one of the warm fuzzy moments. I know I have visitors today from 5 Minutes for Special Needs. Those of you who are farther along the path, what words of wisdom have you to offer?

***

Linked to Wordful Wednesday and to

The Twinning of the Littles

They tootle down the sidewalk this morning as I sit with my back against the brick front of the garage. Nicholas is in the lead, with the pop mower, but Julianna quickly overtakes him with the umbrella stroller (empty, of course). In a minute, I’m going to have to go chase them, turn them around before they get too far away.

They’re two peas in a pod, my 3 ½ year old elf and my baby who is no longer a baby. I know I’ve said that before, but last night I realized anew how true it is. More now than ever, because Nicholas has just about caught up to his sister. They’re both struggling to reproduce “ma” and “da” and “ba” on command, both signing like they were born to it, learning new signs at a dizzying rate.  Both discovering likes and dislikes, manipulation and the joy of playmates and testing boundaries.

This summer, she was teaching him things—like the sign for “more,” and how to make a lot of noise with stainless steel mixing bowls. 

Signing "more," June 2010

Now, he’s begun to  teach her things. So far, they’re things I’d rather neither one of them knew, like going out in the street, and dropping food in their cups of milk. (Yuck!)

The twinning of my littles has arrived, and there’s a sweetness in watching them discover the world together. The squeals and giggles at the sight of the neighbors’ cat, the mirroring attempts at imitating a dog barking on the next street over. If things continue on the same track, three months from now it will be over, Nicholas overtaking and leaving his big sister behind.

Still, I expect it’ll be a while before he realizes it. He’ll continue to trot along behind her, screaming when she takes his toys, causing her to scream when he takes hers, and in between times, sharing giggles and games so cute that they break my heart with their beauty. Because no matter how old they get, she will always be his big sister.

15 (months) going on 5

I swear, he thinks he’s five years old.

If anybody else has a fork and a spoon, he has to, too. He has to eat corn on the cob, in defiance of his mouthful of 7 teeth (two of which are no more than nubs).

He thinks he has to have whatever everybody else has, from toys to food; he often flatly refuses to drink milk from his sippy cup, or the plastic cup, because he wants WATER out of a GLASS GLASS like EVERYBODY ELSE.

He begs to have his teeth brushed. Yes, I said “begs.” He will actually go up the stairs on his own, and climb up on the stool and wait, howling for help. And lately he’s been trying to do it himself.

He’s learning to express his preferences through signs and by way of Julianna’s system of grunts. A sign takes him about three seconds to figure out; you can practically see the synaptic connections closing behind his eyes.

He thinks he’s five years old—except when it’s not to his advantage. Then, he’s all baby.

When an older sibling torments him (Alex through a surfeit of love, Julianna through pure cussedness…let’s be honest), the screams fill the entire three levels. He comes running to Mommy for a snuggle…but mostly because he thinks I’m too stupid to know that what he really wants is to bang on the computer keyboard. When you tell him he has to eat his vegetables and his meat before he gets a cracker/fruit/cheese/dessert—woe betide the world! Wailing commences! Unfortunately for Nicholas, he’s the third child. Mommy and Daddy are on to the manipulation game now. Temper tantrums get him nowhere. We’ve developed a tolerance for them, and if he outlasts our tolerance, he lands in his crib with the door closed.

It’s really fun to see him blossom like this. As Julianna continues her incremental quarter-steps forward, he leaps the chasm between them like Mario on a bonus. There is no getting used to the difference in the speed of their learning. Even though I know he’s tuned in to a cosmic radio wave she can’t hear and I have lost tuning for, I still can’t help shivering in wonder as I watch him learn.

Growth charts, begone! My baby’s growing just fine.

Mamarazzi Monday

Published in: on July 8, 2010 at 6:49 am  Comments (8)  
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Two Peas in a Pod

(or, What Happened Because of a Tire, Part Two. )

Motherhood Moments

Post-tire adventure, we piled back in the car and started down the highway again. Now Alex was the crabby one (he wanted the McDonald’s Playplace, not Pizza Hut), and this time he was the one who conked out immediately. Meanwhile, in the captain’s chairs, Julianna and Nicholas struck up an antiphonal chorus. Julianna clapped, Nicholas giggled. Nicholas clapped, Julianna giggled. Julianna squealed, Nicholas giggled. (He has such an adorable laugh.) Nicholas made raspberry noises, Julianna giggled. They stretched their arms across the divide between their chairs and shook hands, and both of them would collapse into hysterics simultaneously.

(Sorry for the poor exposure...it was the best I could get)

It was ten miles of entertainment for Mommy and Daddy, until Nicholas conked out mid-squeal and Julianna waved her empty hand at Nicholas, wailing, “Euh, euh!”

My little ones are two peas in a pod these days. As Nicholas barrels down on his big sister’s developmental age—not to mention her weight and height—they become more and more aware of their compatibility.

But of course, compatibility at this age also involves conflict. As the ranking child, Julianna must keep some measure of control. She likes to teach him…

"More"

…and lead him in chorus…

…and there’s a healthy dose of torment in their relationship, too. If he gets out of line (which means, uh…I don’t know, he looked at her funny?), she “hugs” him.

Yeah, like that. Involving lots of screaming and wailing from him, and a sly smile from her.

Hold onto control as long as you can, little girl. I estimate you’ve got six months, max, before he barrels past you, and starts dragging you along the path of developmental milestones.

And today, he walks

Motherhood Moments

Today, he stands.

Holding onto the coffee table, my unhurried child pulls up onto two little feet, flexing ten little toes more accustomed to “This Little Piggy” than to balance, and tentatively lets go. He wobbles for a second, finds his center, and starts forward: pit-pat, pit-pat. But he’s too far from the next point of support, so he sinks to sitting. And as Big Brother shrieks, “Good job, little boy!” he shows all five of his teeth in a smile that could light up Las Vegas.

Despite his small size, the doctor’s dependence on growth curves and insistence on endocrine tests, despite his meandering pace through the developmental milestones, he walks. After the spot-on-time forward charge of the first child and the eighteen-month concentrated effort it took to teach the second, my third child simply decides it’s time. And without fuss, without drawing attention, he walks.

And it warms a mother’s heart.

What is your motherhood moment this week?

Published in: on June 10, 2010 at 5:34 am  Comments (3)  
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