Down Syndrome
A mother’s reflections on raising a chromosomally-gifted child.
This page is the newest stage in my quest to connect, educate and encourage people on the subject of Down syndrome. It is nothing more than a list of the posts I write on the subject, and about life with Julianna–which doesn’t always mean there’s a strong focus on her disability. There’s plenty of information out there for new parents; the trouble is that most of it is impersonal and scary. I hope that this page will help to put a human face on the experience of parenting a young child with Down syndrome. For the highlights, look for the bold-faced posts.


The Third Year
- My Kid, Your Kid, Whose Kid?
- Julianna
- Mis-Manipulated
- To Tell or Not to Tell: The Question Answered
- Four Steps
- Julianna, Age Two (Plus)
- PICU, How I have Missed Thee (or not)
- Reflections following a life-threatening illness
- Standing at the Precipice
- A Time for…
- Yay God!
- Letters to my Children, Part 2
- Pigeonholed
- Tipping the Scales
- Slices of Sweetness
- Health Care Hassles

The Fourth Year
- Homecomings (or a history of hospital stays)
- Waving Goodbye
- The Magic Chromosome
- Young Love: A Schoolbus Motherhood Moment
- Nationalized Health Care, Down Syndrome, & Abortion
- Twenty-One
- A Nursing Story
- The Twinning of the Littles
- Special Exposure Wednesday
- Bathed In Grace (AKA Drowned Kitten)
- Because They’re Worth It
- Heavenly Peace
- Responding to the Un-Answerable Comment
- A Writer Mama’s Motherhood Moment
- Touch Points

The Fifth Year
- What it’s like to receive a diagnosis of Down syndrome
- The Crying Game
- Blind Sided What To Do About the Elephant In The Room Teaching Chores…What A Chore
- A Post For All Who Call Themselves Prolife
- A Good Year
- A Kerfuffle About Doughnuts (or: The Rules Apply To Special Needs Kids, Too!)
- American Idol In Training
- Touch Points, the Sequel
- Shoe Shopping For Kids With Special Needs
- When Julianna Laughs
- Inclusion
- She Loves Babies. Is That Good or Bad?
- Great Expectations




The Eleventh Year
- Being Clear-Eyed About My Special Needs Child, And My Responsibility To Her
- On Losing a Child, Recognizing the value of friends, and recognizing that everyone really does know who you are
- Fun with IEPs
Adolescence
- Being Clear About My Special Needs Child, And My Responsibility To Her
- Testing (or: when a morale-booster ends up being demoralizing)
- Mad Lib Theology
- Disability and Friendship