It’s been a month since we returned from Disney World, and for that entire time I’ve been intending to reflect about Disney with disability/celiac. We are planners in our house, but oh! the heights of planning we have achieved since my daughter was diagnosed with celiac disease. Our first meal at a restaurant required a…
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Stream of Consciousness
I’m writing this on a Thursday night (though it won’t post until morning), sitting on my deck by myself on a lovely evening in May. If any of you have ever had four kids, three of them teenagers, you know what my May is like. Currently we have soccer, baseball, horseback, color guard, drumline auditions,…
Read MoreThe Celiac Report, Week 9… plus related updates on my daughter
We’re 9 weeks into the celiac journey with our daughter. My past celiac reports have resembled diatribes more than anything, so I thought I’d do something different this time. Bear with me a minute. Item 1: Julianna has always been a bit of a cutup. She laughs—loudly and lustily–whenever anyone laughs, even when she doesn’t…
Read MoreThe Celiac Report, Week 6
Our adventure with celiac-disease-inspired gluten-free cooking has progressed in the last month, so I thought I’d share my updated insights. 1. I have done so much web searching that Google now knows to add the words “gluten-free” to any food-related search string. 2. I’ve looked up so many ingredients. If you’d asked me two months…
Read MoreThe Celiac Report, Week 2.5
We’ve been doing the celiac thing now for 2.5 weeks, and I have a few initial experiences to share: Gluten free ≠ celiac gluten free. I keep hearing, “This is the time to be gluten free. There are so many options there didn’t used to be.” This is all true, but nonetheless it’s a big…
Read MoreUnwanted Adventures
Last week, my chromosomally-gifted daughter was diagnosed with celiac disease. Let me insert this appeal up front: We’re getting tons of advice from all quarters, so please don’t fill up the combox with that; I can’t process it all anyway. I have to learn things bit by bit. That was true when she was born…
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Kathleen M. Basi 