Bizarre Dreams

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woman underwater wearing black one piece swimsuit
Photo by Engin Akyurt on Pexels.com

I had a bizarre series of dreams last night:

1: I couldn’t get apps to close on a smart device. (Anyone who knows me knows this is particularly bizarre because I don’t use a smart phone.)

2: I couldn’t find the right pair of contacts.

3: We drove up Scotts Bluff (one of the settings in my road trip novel), but the drive was so steep, I was certain we were actually inverted and I a) couldn’t believe we weren’t falling off and b) couldn’t understand how my risk-averse husband was so blase about it.

But the last dream was about a magical realm set in the world of one of my previous novels. When I woke up, I thought, “That would make a great back story for a new novel.” And I couldn’t get back to sleep for excitement thinking through the possibilities.

Since finishing my big novel revision and sending out a bunch more queries last week, I’ve been feeling a big void in desire and interest in novel writing. Partly because I’m still waiting for those great outdoor days off I promised myself. (Kayaking. Today. Even if it’s only in the 50s. Because hey. It’s not raining, and there are only a couple weeks of school left!)

But I haven’t been freaking out about my lack of desire. I figured it’d come in its good time. And now I believe it has. Because now I have two novels to develop and choose between…plus the one I tried to write last winter that I still think is a good concept, but needs more development.

Which makes this week a win, I think.

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IEP Day

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IEP

This is what #IEP prep looks like: notes from parent advocate, part A and B. The first draft of the IEP, from which the comments came, split in two: the half we got through last week, and the part we have to do today—the goals, i.e the basic shape of her middle school experience. Finally, draft 2, which we will finish marking up today.

This is our 10th IEP meeting. Our first happened in preparation for her entry into ECSE (Early Childhood Special Ed) shortly before she turned 3. This is the first time we’ve hired a parent advocate, having realized over the past year that we have, in fact, been delusional the past 9 year in thinking we had a good enough handle on the process that we could do it on our own. And I have to say, I’m so much more relaxed this time than I have been in the past because there is an expert in the room who’s there just for us.

Even so, this is inherently a stressful process. What you can’t see from the picture is that each of those drafts is 20+ pages long. It’s a mind-boggling amount of information, written in lingo like this:

“Julianna will use clear speech (over-articulation) strategies at the sentence-level in 80% of opportunities. Baseline: 60% in structured speech activities at the word-level, with visual cue only (e.g., written minimal pairs).”

Did you all follow that?

My guess is that most people who have never been through an IEP were like me, completely unaware of the complexity of the process. Even now, I can sense eye rolls. Why the lingo? Why does it have to be so complicated?

Well, to effectively administer something like special ed, you have to have specific, measurable targets. And as targets zero in, you end up with specific language to make clear the distinctions. Ergo, lingo. Let’s face it. Who but a speech therapist would ever think of the fact that you can struggle to say “f” and “v” in three different places in a word–beginning, middle, end? Until it happens to you or your kid. (Oh, but that’s a different goal. I spared you that one!)

The process is what it has to be–but it is hard for parents. Hard to keep it all straight. Hard to understand. Hard to gauge the right level for pushing the envelope yet not overreaching.

What the IEP process doesn’t do, we realized, is create the specific shape of her days. Last spring, we spent 3 hours in an IEP meeting creating what we felt was a good plan, with 61% of her time spent in reg-ed. But in the fall, we found out those reg-ed minutes were so splintered, they were all but irrelevant. We had to have another hour and a half meeting to rearrange the schedule so that she could actually spend meaningful blocks of time with her peers.

It worked. She now has a group of typically-developing girls that she pals around with during the day. But the IEP didn’t guarantee that.

As always, posts like these run the risk of making special needs look like all stress and drudgery–and scaring off parents confronted with a diagnosis. But I really want the general population to get an idea of what supports are needed, because disability is kind off the radar for the vast majority of people, and even for those who do have it on their radar, it’s easy to underestimate the experience and think, “Why are you people making such a big deal of these public policy questions?”

We’re making a big deal of it because from inside the situation, the stakes are so high.

Cover Reveal and Award Nomination!

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It’s been a crazy few months for me, both in real life and in my writing life. I’ve been working on a major revision of my newest novel in response to agent feedback. This is the first time I’ve tried to do such a thing on a tight turnaround and now I understand the stress in other women’s voices when they have talked about that process! But I finished yesterday (more or less; waiting on a bit of feedback from an expert on one particular issue) and now I have time to share a couple pieces of news I haven’t had time to put out there!

Show us Your Face - cover smallFirst, my song, “Show Us Your Face,” published by WLP, is a finalist in the Association of Catholic Publishers’ “Excellence in Publishing” awards for 2019! This was the piece I brought to the Liturgical Composers Forum for review the first year I attended. You can hear an excerpt on the “listen” tab here.

Second, I have a book coming out with Our Sunday Visitor in July 2019. Aaaaand….cover reveal!

Cover Art T2348[2]

This is part of OSV’s “Companion in Faith” series. Here’s OSV’s back cover blurb:

Blessed are they …

The Beatitudes are the words of Christ that cut to the very core of the Christian life. But have they become so familiar that we breeze past them, without taking them to heart? The Beatitudes can — and will — transform our lives in a powerful way, if we take the time to connect with them in our daily lives.

In The Beatitudes, you will find guided meditations based on the Beatitudes found in the gospels of Matthew and Luke. For each Beatitude you will:

  • Focus inward: What is Christ saying to you?
  • Focus outward: What is Christ saying about the world?
  • Pray, reflect, and act: What is God asking you to do?

The reflections in The Beatitudes are useful for examining your daily life, preparing for the Sacrament of Reconciliation, and deepening your prayer life.

Stay tuned! I’ll share more as we get closer to launch date!

 

A New Project!

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Intentional Catholic circleThis Lent, I began a new project called Intentional Catholic, a website devoted to the living the faith at the messy intersection of faith and the real world. I’m exploring the writings of the Church that touch on a lot of these topics, and sharing quotes from them as well as some of my own reflections. So from here on out, I will no longer be sharing those kinds of posts here. If you’re interested, hop on over to Intentional Catholic and follow!

On Any Given Day…

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On any given day, you  might find on or around my kitchen table…

Random action figures (also substitute “LEGO figures”)

figure…someone’s art projects, which are never, ever complete (and usually involve lots of tape and cut up paper)…

markers

…a track bag…

track bag

…someone else’s homework that they were too lazy to actually put in their backpack when they were told to clear the table for dinner…

homework

…random useless toys from Chuck E Cheese…

toy

…and paper weapons of dubious origins.

weapon

Call it #lifewithboys.

The Way of All Things

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It’s been an intense fall. An intense year, really, but particularly an intense fall in my world.

We had no rain to speak for a couple months this summer, and so I didn’t expect much in the way of fall color, but it got crazy cold all at once. The one and only benefit of having no fall—just summer and then winter—was that the temperature shock overcame the lack of water. There’s a magic to fall color that never fails to move me, and as I was outside trying, as I do every year, to capture it, I was also thinking of my grandmother, who was dying and not dying and dying again through all of this.

I thought of the hasty trip to St. Louis with my sister, to see Grandma in the hospital, and the four hours of unexpected conversation we got out of that.

I thought of my 30+ cousins rushing into town to see her—she had 10 kids, in case you’re wondering—and chuckling because when another of my sisters called the hotel in Grandma’s small suburban community, they were completely befuddled because their entire hotel was booked full, and they could not, for the life of them, explain why. My sister laughed and said, “It’s all my family.”

I thought of the last time I saw my grandmother, propped up in a recliner with a bipap strapped around her head, and how Julianna was too scared to come give her a hug and say goodbye, so Grandma said, “I certainly understand,” and had my aunt remove the mask so Julianna could see her face one last time.

I thought of our week in Washington DC, visiting museums and eating out of food trucks and hanging out with my oldest friend—another cousin—and how everything seemed so raw and real and vibrant, and half my heart was an airplane ride behind me, with my parents and sisters and cousins and uncles and aunts, and most of all my grandmother—and realizing I couldn’t imagine a world without her in it.

I thought of how flying home to find central Missouri in a blaze of peak color glory.

And I thought, “Death can really be a beautiful thing.”

I intended to blog on this topic a month ago, but then there were fires in California and mass shootings (in the plural) and I thought perhaps waxing poetic about the beauty of death might be not only insensitive, but downright myopic.

Peak is long past now. The trees are all asleep for the winter, and my grandmother sleeps a different kind of sleep, one that wakes only into eternity. I sang the psalm at her funeral, and last week our Thanksgiving table was adorned with a pitcher that used to sit atop her hutch.

Two days before Thanksgiving, my parents finished harvest. Harvest has always been my favorite time of year on the farm, poignant and beautiful and bittersweet. But more so this year than ever, because this was the last. My parents are retiring.

The day after Thanksgiving, my family attended a play in a small community two or three towns beyond my hometown. It was weird enough to bypass the exit for my parents’ farm on the way there. But coming back, in the dark—and it’s so dark out there in rural Missouri—it was hard not to tear up, watching one familiar gravel road and another pass by, organizing the black grids between them into fields with particular memories. Thinking of the time the car broke down on that road and we had to walk home, or the time during the 93 flood, when I got the tractor stuck up to its axles in the field just beyond that field, or the way we once walked across the back fields to the house that lies just down that road and swam in their pond, or the way I stopped in this field just a year ago to ride the combine with Dad on the way home from a rehearsal.

All those memories, and realizing there aren’t any more to be made in those fields. They’ll be farmed by someone else now. I won’t have a reason to drive those dusty roads and navigate the uneven surface of a newly-harvested field. I won’t have a reason to smell that cool, semisweet smell that only comes at harvest time with the pouring of grain and the chewing up of plants in the threshing machine.

It’s disorienting, and very emotional. I got to thinking that I could name probably half a dozen pivotal elements of my identity: things that for my entire life have defined how I see myself in relation to the world. In less than a month, two of them have gone the way all things go.

It’s all beautiful, and I am eternally grateful for the richness of my memory. But it’s sad, too.