The Celiac Report, Week 9… plus related updates on my daughter

We’re 9 weeks into the celiac journey with our daughter. My past celiac reports have resembled diatribes more than anything, so I thought I’d do something different this time. Bear with me a minute. Item 1: Julianna has always been a bit of a cutup. She laughs—loudly and lustily–whenever anyone laughs, even when she doesn’t…

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The “Daily Buzz”

One of my daughter Julianna’s IEP goals for this year is to learn to express herself in writing. We’ve always had trouble getting from her what is going on in school; she needs help learning to bring what’s in her head, well, out of it. Her absolutely fabulous teacher identified that as a real need…

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An Update On My Chromosomally-Gifted Girl

A few weeks ago I posted on Instagram about my chromosomally-gifted girl’s adventures in color guard costuming. The response was so sweet, it reminded me that for all my personal interests of music and fiction and photography, it’s my daughter you all like to read about the most. It’s been quite a while since I…

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Testing (or: when a morale-booster ends up being demoralizing)

This past week, we got the results of Julianna’s “re-eval.” Now, for those of you who are not immersed in the world of special education, part of the process is that every three years a child must be re-evaluated to make sure they still qualify for special ed. There’s a whole battery of tests, and…

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Mad Lib Theology

Today, I visit my blog to talk about this girl: Wednesday nights, Julianna goes to “church school” (because it’s easier for little kids to say than “religious ed”) while we’re having choir practice. Usually, in the chaos of grabbing boys from the nursery, cleaning up octavos and books, and getting an overtired family of six…

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On Losing A Child, Recognizing the Value of Friends, and the Humbling Realization That Everyone Really Does Know Who You Are

It’s almost too complicated a story to explain. A group of parents were meeting Friday after school, at the Starbucks inside Barnes & Noble, to discuss a topic of mutual concern while the kids perused the books and toys. When it was time to go, I sent Nicholas to get Julianna from the children’s area,…

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The Reason That Dream Was So Scary

I’ll blame it on watching “Logan” late at night. I had this vivid dream in which we were at my parents’ church and in the middle of the Gospel, I realized Julianna’s bus was due to drop her off at home in five minutes. Only my parents’ church is 35 minutes away, and by the…

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The Charm and Challenge of Raising Julianna

In bullet points, in no particular order: Every time we introduce Julianna to a new teacher, be that classroom or for swim lessons, we have to begin with these words: “She likes to pretend she’s more helpless than she is. You have to be firm with her.” The truth is, she manipulates without even realizing…

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The Queen of Random (a Friday Funnies post)

Christian, at bedtime: Hello, Miss Horse Woman. Julianna: Stop that. Christian: Why do you want me to stop? Julianna: Because you are old. Parenting requires a  serious sense of humor. That’s all. With my husband going out of town for a conference, I’m giving myself permission to take a Spring Break from blogging. See you…

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The Orthopedic Surgeon Who Rocked My World (or: The Saga That Isn’t)

You all remember, I’m sure, the saga of the orthotics. I’ve been talking about it periodically for years, both here and on Facebook. After Julianna broke her second brace in January, the orthotist sent us back to the PT. The PT told me she really wasn’t sure what to say except she’d like to see…

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