The Celiac Report, Week 6

Our adventure with celiac-disease-inspired gluten-free cooking has progressed in the last month, so I thought I’d share my updated insights. 1. I have done so much web searching that Google now knows to add the words “gluten-free” to any food-related search string. 2. I’ve looked up so many ingredients. If you’d asked me two months…

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The Celiac Report, Week 2.5

We’ve been doing the celiac thing now for 2.5 weeks, and I have a few initial experiences to share: Gluten free ≠ celiac gluten free. I keep hearing, “This is the time to be gluten free. There are so many options there didn’t used to be.” This is all true, but nonetheless it’s a big…

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Unwanted Adventures

Last week, my chromosomally-gifted daughter was diagnosed with celiac disease. Let me insert this appeal up front: We’re getting tons of advice from all quarters, so please don’t fill up the combox with that; I can’t process it all anyway. I have to learn things bit by bit. That was true when she was born…

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The “Daily Buzz”

One of my daughter Julianna’s IEP goals for this year is to learn to express herself in writing. We’ve always had trouble getting from her what is going on in school; she needs help learning to bring what’s in her head, well, out of it. Her absolutely fabulous teacher identified that as a real need…

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An Update On My Chromosomally-Gifted Girl

A few weeks ago I posted on Instagram about my chromosomally-gifted girl’s adventures in color guard costuming. The response was so sweet, it reminded me that for all my personal interests of music and fiction and photography, it’s my daughter you all like to read about the most. It’s been quite a while since I…

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Disability and Friendship

So here’s a thing you might not consider about having a kid with a disability: It is REALLY HARD to make friends. Think about it. How do little kids make friends? STEP ONE: They find kids at school with like interests and personalities. They come home and tell you about it. STEP TWO: A) If…

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Testing (or: when a morale-booster ends up being demoralizing)

This past week, we got the results of Julianna’s “re-eval.” Now, for those of you who are not immersed in the world of special education, part of the process is that every three years a child must be re-evaluated to make sure they still qualify for special ed. There’s a whole battery of tests, and…

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Mad Lib Theology

Today, I visit my blog to talk about this girl: Wednesday nights, Julianna goes to “church school” (because it’s easier for little kids to say than “religious ed”) while we’re having choir practice. Usually, in the chaos of grabbing boys from the nursery, cleaning up octavos and books, and getting an overtired family of six…

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On Losing A Child, Recognizing the Value of Friends, and the Humbling Realization That Everyone Really Does Know Who You Are

It’s almost too complicated a story to explain. A group of parents were meeting Friday after school, at the Starbucks inside Barnes & Noble, to discuss a topic of mutual concern while the kids perused the books and toys. When it was time to go, I sent Nicholas to get Julianna from the children’s area,…

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Fun With IEPs

Fun fact: I spent 2 1/2 years as a music ed major before deciding all I really wanted to do was play my flute, and I universally hated every one of my education classes. The class that broke me and caused me to switch? Special Education For Non-Special Educators. It took me until Julianna was…

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