The Celiac Report, Week 9… plus related updates on my daughter

We’re 9 weeks into the celiac journey with our daughter. My past celiac reports have resembled diatribes more than anything, so I thought I’d do something different this time. Bear with me a minute. Item 1: Julianna has always been a bit of a cutup. She laughs—loudly and lustily–whenever anyone laughs, even when she doesn’t…

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The Celiac Report, Week 2.5

We’ve been doing the celiac thing now for 2.5 weeks, and I have a few initial experiences to share: Gluten free ≠ celiac gluten free. I keep hearing, “This is the time to be gluten free. There are so many options there didn’t used to be.” This is all true, but nonetheless it’s a big…

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An Update On My Chromosomally-Gifted Girl

A few weeks ago I posted on Instagram about my chromosomally-gifted girl’s adventures in color guard costuming. The response was so sweet, it reminded me that for all my personal interests of music and fiction and photography, it’s my daughter you all like to read about the most. It’s been quite a while since I…

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Mad Lib Theology

Today, I visit my blog to talk about this girl: Wednesday nights, Julianna goes to “church school” (because it’s easier for little kids to say than “religious ed”) while we’re having choir practice. Usually, in the chaos of grabbing boys from the nursery, cleaning up octavos and books, and getting an overtired family of six…

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On Losing A Child, Recognizing the Value of Friends, and the Humbling Realization That Everyone Really Does Know Who You Are

It’s almost too complicated a story to explain. A group of parents were meeting Friday after school, at the Starbucks inside Barnes & Noble, to discuss a topic of mutual concern while the kids perused the books and toys. When it was time to go, I sent Nicholas to get Julianna from the children’s area,…

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Fun With IEPs

Fun fact: I spent 2 1/2 years as a music ed major before deciding all I really wanted to do was play my flute, and I universally hated every one of my education classes. The class that broke me and caused me to switch? Special Education For Non-Special Educators. It took me until Julianna was…

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The Reason That Dream Was So Scary

I’ll blame it on watching “Logan” late at night. I had this vivid dream in which we were at my parents’ church and in the middle of the Gospel, I realized Julianna’s bus was due to drop her off at home in five minutes. Only my parents’ church is 35 minutes away, and by the…

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The Charm and Challenge of Raising Julianna

In bullet points, in no particular order: Every time we introduce Julianna to a new teacher, be that classroom or for swim lessons, we have to begin with these words: “She likes to pretend she’s more helpless than she is. You have to be firm with her.” The truth is, she manipulates without even realizing…

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Photo Friday: Sunny Oak Through The Eyes of a Five-Year-Old

Michael had the iPad last night at Julianna’s last therapeutic horseback riding lesson of the spring session. Enjoy his photos, and a couple videos at the end! I did not think I would be able to share any of the videos Michael took of Julianna riding, because I don’t have permission to show the other…

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My Alternative Spring Break

You know those trips organized by campus ministries every year, where college kids go to build houses in Appalachia or Central America? I never did one of those. I was way too timid (shocking, I know) and way too comfortable in my own ordinary. Those kinds of missed opportunities are the only real regrets I…

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