I’ve said before that one of the goals of my writing is to offer encouragement to families receiving a diagnosis of Down syndrome. When you’re new to the world of Trisomy 21, there’s so much to absorb, and unfortunately it’s virtually all negative. It’s not a conspiracy—it’s just the nature of medicine. They study the…
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Heaven
What is your concept of Heaven? Mine is very simple, and, well…selfish. I’ve had bad eyes since the second grade. I dream of opening my eyes in the morning and being able to see…without glasses or contacts. I’m too chicken to go for Lasik…and anyway, my eyes are so bad I’m not sure I’d…
Read MoreA Farewell to Gene
A plain, cedar box. Unfinished, without attempt to ease the transition from faintly glowing mauve to blond. No sculpted lid, no shining metal handles. A box with a few ropes attached for carrying, a box just deep enough to hold a body, and not an inch more. Today we said farewell to Gene…
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One year and 354 days ago, Christian and I found out that our newborn daughter had Down syndrome. It is news to make you reel. It was more than an hour before we caught our balance enough to start thinking who we needed to call. I’m not even sure we started with our parents.…
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Kathleen M. Basi 