Julianna has been changing lately. It started a year or so ago, when we realized she had lost that wispy, delicate feel. She’s still tiny and I can still pick her up and carry her, but it’s no longer easy. She feels solid now, rather than fragile, her physical frame finally catching up with her…
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My Life With Down Syndrome
A sliver of what my life is like #parenting a child with #Downsyndrome.
Read MoreStained Glass, A Strong-Willed Breakthrough, and Learning to ride a bike in a week (theoretically)
It’s been a pretty intense week, with Julianna in iCanBike camp in a nearby town. I’ve had to pull her and Nicholas from school early every day so we could make the half-hour drive to the camp. They begin with this gizmo, which is sort of barrel-shaped, so it’s narrower and less stable than training…
Read MoreOn Julianna, at the end of Grade 2
Every so often, I like to share some of Julianna’s school work and progress. I need to be clear: this is not a total picture of Down syndrome. It’s not even a total picture of “what a person with Down syndrome can do in the second grade.” There’s a vast range of ability among people with…
Read MoreMaybe I Really Am Living With An Angel (A Mercy on a Monday Post)
It was last December when I read the post that kicked off this exploration of mercy. This post, specifically, in which Rory Cooney suggests that we have a bad habit of substituting confession for actual mercy. I thought, “Wait…there’s more to mercy than confession?” Then I thought, “Maybe I’d better dig into this a little…
Read MoreWhich Bone Is The Extra Chromosome In?
“Which bone is the extra chromosome in?” This is the question I was called upon to answer last night. It was 7:43p.m., and my day had been a nonstop madhouse, beginning with an 8:30 a.m. flute rehearsal and culminating in a mad rush from 4:30-8p.m. to get Julianna to and from dance, everyone fed, dishes…
Read MoreYou should like my daughter because she’s amazing, not because of her special need (reblog)
Why is it so newsworthy when a kid with DS gets elected prom king?
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Kathleen M. Basi 