1. We have now been in the NICU for over a week. 2. The lactation consultant tried to take pictures of us on the iPad,but somehow we ended up with video. Try this link: https://www.facebook.com/profile.php?id=547452427 3. My husband reached his limit on Wednesday. This was THEBIG WEEK of Advent for us…and trying to handle it…
Read MoreAll articles filed in health care
Touch Points, the sequel
Yesterday afternoon, Julianna and I went to talk to the “M3”’s—the third year medical students at the university. They are on an eight-week rotation through the major areas, currently ped’s. They have weekly seminars in which guest lecturers come in to address topics in the field. I have no idea what other topics they are…
Read MoreHospital Reflections
It’s been just over two years since Julianna’s last major hospital stay. (19 months since the last “observation” overnight.) I woke up this morning thinking, not about that illness, but the first one. The one that more or less kicked off this blog, back in 2007. Thinking about how the staff told Christian to prepare…
Read MoreMama’s On Live Radio! Quick, Time to Run Away!
Early in March, I participated in the local Children’s Miracle Network radiothon benefiting what we call in our house “Julianna’s hospital.” I’ve been meaning to write about it ever since, but I kept hoping I’d get my hands on all the photo files I wanted to share. But I finally decided to go with what…
Read MoreWhat it’s like to receive a diagnosis of Down syndrome
___1___ Wrapping up “Julianna week” here at So Much to Say, So Little Time. This week, I participated in a research study. The researchers are asking people about their experiences at and around the time they received a diagnosis of a “congenital condition,” such as Down syndrome. I decided to share some of my answers…
Read MoreAn Infertility Story, Part 3
If you’re just joining us, click here for part 1 and part 2 of the series. By June of 2003, we’re well into a familiar pattern: I get emotional, Christian gets frustrated. He feels that I won’t allow him to get excited when we see signs that might mean pregnancy, but I counter that I…
Read MoreResponding to the un-answerable comment
On Monday morning after Christmas, I found this comment, on an earlier blog post, from “Greg” in my email inbox (all mistakes his): Will human stupidity know no bounds? YOU chose to have a disabled baby. YOU chose to not have an abortion YOU decided to raise it. Now you expect insurance to pay for your…
Read More7 Quick Takes, 105
___1___ So…Christmas gifts. We are not terribly fancy people, and I don’t believe in buying a gazillion toys, b/c they’re already scatterbrained and unfocused with the toys we have. And last year, we got stuff for Julianna, which she has now ignored for 11 months in favor of reading books and listening to music. And…
Read MoreMe and massage
It was the fall of my sophomore year of college, and I had been pushing hard to prepare for a competition. Every day I spent 3 ½ to 4 hours in a practice room, plus 2-3 hours in orchestra and wind ensembles. (Good heavens, did I really ever play that much? It’s another life!) And…
Read More7 Quick Takes, vol. 91
1. I got a speeding ticket last night. (Yes, Kelley, on the way home from your house.) It was actually really unfair–not b/c I wasn’t speeding (I’m sure I was; I thought I was following traffic, but it was at the bottom of a very long hill, and a Chrysler Town & Country carries a…
Read More
Kathleen M. Basi 